Links

Local Links:

  • Leukemia-Lymphoma Society of Central NY - All sorts of useful information on Leukemia, Lymphoma, Myeloma, and of course our local LLS and their happenings.
  • Every Patient’s Advocate and diagKNOWsis - A local newspaper columnist, blogger, and patient advocate (Trisha Torrey) has pulled together some great information and offers practical advice. Quoting her site ->”Every Patient’s AdvocateTM has one important purpose: to help patients learn everything they can about advocating for good health and medical care for themselves or their loved ones.”

Young Adult Survivor Sites:

  • Planet Cancer - PC is probably the premiere destination for young adult cancer survivors online. Great information, forums, retreats, etc.
  • i2y - I’m Too Young for This (i2y) is a great site for young adult cancer survivors. They have podcasts, happy hours, and links to all sorts of online resources.

Useful Sites:

  • Live for the Challenge - Started by a young adult cancer survivor this site is a registry site (like a wedding registry) for cancer patients and people with other medical problems to post what they need (i.e. wheel chair, wig, etc) and have friends, family, or total strangers donate to help raise money for the item(s).

3 Responses to “Links”

  1. Samantha, on March 28th, 2008 at 1:24 pm Said:

    Hey there…
    I apologize if I have already reached out once (I can be forgetful sometimes), but I wanted to be sure we connected. I work for Camp Good Days and Special Times, which this year will be offering its first ever Young Adults program! Our programs are all free of charge and we are REALLY excited about sharing info about them! Although my office isn’t terribly large (we can hold 10-15 people), I will gladly volunteer it for any need you might have (looks from your posts above as though space might be a small issue?). Anyhow, please get in touch and let me know how we can best connect to serve the young adult survivors in our area! Thanks…

  2. woodd00, on March 30th, 2008 at 2:17 pm Said:

    Hi Samantha, thanks for getting in touch! I am sure we will be talking as we get ready for the OMG conference and at the event. We should definitely work together!! I heard about your new program and I think that all of our activities being developed in this region are going to be a huge help to our local YA survivor community. - Dan

  3. woodd00, on March 30th, 2008 at 2:17 pm Said:

    P.S. - I will touch base with you on email. - Dan

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